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  #1  
July 8th, 2006, 04:57 PM
mom2LyricStoryLegend's Avatar Platinum Supermommy
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I have never posted here before but that it would be a good place to see different points of view on a subject that is very important to me. My daughter was born with something called microtia. Basically her right ear is nonexistent. She just has ear lobes but not a regular ear. There is no opening to her canal either. She does have some hearing from that ear and she has 100% hearing from her other ear. The ENT, pediatrician, Early childhood development specialist, have all told me that being hearing impaired on one side should not effect her speech or development. Microtia can be repaired as early as 3 or 4 years old. The repair involves reconstructing a "normal" ear. My question is, do you think this is a decision the parent should make for their child...(she was born without something she was suppossed to have, so should I give it to her?) or should I let her decide when she is older if this is something that she would like to have fixed? Here are some pics so you can see what it looks like.. sorry this was such a long post!
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  #2  
July 8th, 2006, 04:59 PM
mrobinson
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You want opinions? Yep you found the right place!

You're little girl is so cute.

I think medical operations to improve her life ~ absolutely go for it!
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  #3  
July 8th, 2006, 05:04 PM
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Is it like a reconstructive surgery where they just reconstruct the ear or does it involve some kind of hearing implant in that ear as well? I only ask because I know there is quite a bit of debate surrounding the implant.

But I would definitely do the recontructive surgery, ears are important in balance and hearing and I would think that the surgery would be more effective if done earlier before she grows too big. (of course, I know nothing about this medically but it just seems that way).
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  #4  
July 8th, 2006, 05:04 PM
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I would say go for it, absolutely, it will improve her quality of life and she probobly wont even remember any of the pain b/c she is so young.

BTW, your little girl is the cutest thing I have ever seen !
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  #5  
July 8th, 2006, 05:19 PM
mom2LyricStoryLegend's Avatar Platinum Supermommy
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Quote:
Is it like a reconstructive surgery where they just reconstruct the ear or does it involve some kind of hearing implant in that ear as well? I only ask because I know there is quite a bit of debate surrounding the implant.[/b]
The surgery involves reconstruction of the outer ear and opening up the canal to the inner ear. Combined it would be a total of about 4-5 surgeries.
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  #6  
July 8th, 2006, 05:24 PM
Cereal Killer's Avatar Aiming for mediocrity
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I would definitely do it! I wouldn't see this as a controversial issue of consent like ear piercing or circumcision, this is an operation to improve her quality of life. Either way, I would say whatever you decision you make is in the best interest of your daughter.
I think she is beautiful, by the way!
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  #7  
July 8th, 2006, 05:26 PM
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Quote:
Quote:
Is it like a reconstructive surgery where they just reconstruct the ear or does it involve some kind of hearing implant in that ear as well? I only ask because I know there is quite a bit of debate surrounding the implant.[/b]
The surgery involves reconstruction of the outer ear and opening up the canal to the inner ear. Combined it would be a total of about 4-5 surgeries.
[/b]
That sounds all ife improiving to me! I would definitely go for it.

I only asked about the implant because I once heard a very heated argument about putting in a hearing implant (coclear or something like that- I may be way off). I didn't quite grasp the whole thing, bit it seemd controversal with lots of angles from what I did understand.

In any event, your situation seems to be nothing about that, so I would def go for it!
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  #8  
July 8th, 2006, 06:20 PM
Kierasmom's Avatar Platinum Supermommy
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I agree with the other ladies! She is such a cutie BTW!
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  #9  
July 8th, 2006, 06:50 PM
Tanya G's Avatar Mega Super Mommy
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I have a friend who is completly deaf in her left ear since birth. her parents didnt even notice till she was about a year or two old when they noticed that if they whispered in that ear she didnt seem to notice. She has absolutely no problems becuase of this, so I agree that you dont need to worry about her speech development or anything like that. But I would definitely consider having these surgeries, I obviously know nothing about the condition, but it always seems the younger the better because they body can regenerate better. Also will her ear look normal afterwards? I only ask because you have to face the sad reality that she may have ppl notice or children pick on her, and if its something that can be corrected, if its when she is young, she will have no such memories of anyone even noticing. I wish you and your daughter the best of luck. Its not easy watching your child go through surgeries like that, but just remember it is to help her.


Also, I thought I might add, my sister has a genetic condition, her spine is completely messed up. I cant remember the name but she is missing several ribs, and a shoulder bone all on her left side. She doesnt care that its noticeable and that it looks different but she often has severe backpain becuase of it. My parents noticed it when she was young and had many tests run on her and just felt they coudlnt put her through anymore, so they didnt do anything about it, but now its too late, becuase now that she is an adult, correcting it would leave her paralysed. just something to think about.
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  #10  
July 8th, 2006, 09:30 PM
~Jess~'s Avatar Platinum Supermommy
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Quote:
I would definitely do it! I wouldn't see this as a controversial issue of consent like ear piercing or circumcision, this is an operation to improve her quality of life. Either way, I would say whatever you decision you make is in the best interest of your daughter.
I think she is beautiful, by the way![/b]
Go for it!
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  #11  
July 8th, 2006, 10:50 PM
Chunky Monkey's Avatar Platinum Supermommy
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She is so beautiful!

I say if it is going to improve her life, go for it! In some sense yes it is cosmetic also but this is not just doing something on a whim. Kids don't care if another has their ears pierced. But kids can be cruel and something like this she will more than likely get teased for.

I wish you the best of luck in your decision!
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  #12  
July 9th, 2006, 01:17 AM
beck12's Avatar Platinum Supermommy
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I would talk to her ear Dr as well as a plastic surgeon. Many surgies (like the spinal one mentioned earlier) are better done when young - other items that are cosmetic are better done when older. Unlike other parts of our bodies, ears actually continue to grow (albeit slowly) over a life span. If having that surgery done now (at least the reconstructive part) would leave her with one ear smaller than the other as an adult, I would say wait on that part. I am certain, that if you are talking about 4-5 surgeries, there are stages of what can be done & things you could opt to do now & things you could opt to do later.

I had a rather large scar on my forehead from a bad tumble when I was very little that developed some keloid material. When I was young I hated it becasue people were constanly asking what happened & it would get red very easy - even if I just got overly warm - so people always seemed to think it was a fresh bump. As I came into puberty it bothered me a bit more, I even had one stupid teacher tell me once it was such a shame to have such a big scar on such a pretty face (idiot). Anyway - I wanted it removed & my mom took me to the Dr. He said I could see a plastic surgeon & referred me but also said I shouldn't touch it until I was 18. The plastic surgeon said removing it then could leave me with a larger scar than what I would have if I had it done at 18. I was pissed. All through most of high school it got no better really & I thought these Dr's were morons..and then it did - it started to loose color & by 18 is was much better and now no one ever even sees it.

I am NOT saying my scar is like your daughters ear & that it will self-correct (or improve). What I am saying is that there are things that change on the body over time & that in pediatrics this is particularly true. Because of this I would exhaust every avenue to find out all I could about what will give her the best overall results for possible hearing & for appearance at adulthood. Childhood may be tough - but it is short compared to the remainder of life & I would rather have the rest of my adult life with something I am happy with, than have something corected in childhood that leaves an adult outcome that is any less desirable - KWIM? BTW I worked with a teenager that had this condition & never had any surgery & she really was totally okay with her ear. She is the one that pointed it out to me - because with her long hair you would have never even noticed.
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  #13  
July 9th, 2006, 09:52 AM
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I'd say go for it! I really like that pic of her in those roses!!!!
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  #14  
July 9th, 2006, 03:04 PM
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Quote:
You want opinions? Yep you found the right place!

You're little girl is so cute.

I think medical operations to improve her life ~ absolutely go for it![/b]
I agree!

She is so beautiful!
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  #15  
July 9th, 2006, 08:21 PM
nat81
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She is beautiful!

I agree with all the posts
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  #16  
July 9th, 2006, 08:36 PM
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I say go for it! You got such a beautiful girl there.
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  #17  
July 10th, 2006, 09:38 AM
DahliaMarie's Avatar Mega Super Mommy
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I was looking over the website you provided, very informative. I think it is good that you are thinking about what she would want, and not just what you think she should have. I see they have several options for the procedure, (http://www.microtia.net/Webpages.asp?WPID=5) may I ask which you were considering?
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  #18  
July 10th, 2006, 12:27 PM
mom2LyricStoryLegend's Avatar Platinum Supermommy
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Quote:
I was looking over the website you provided, very informative. I think it is good that you are thinking about what she would want, and not just what you think she should have. I see they have several options for the procedure, (http://www.microtia.net/Webpages.asp?WPID=5) may I ask which you were considering?[/b]
I would be doing the medpor procedure.
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  #19  
July 12th, 2006, 09:46 PM
friskycat01's Avatar Super Mommy
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I would do it if it were my child because i would want to give them the most normal childhood possible without descrimination or taunting from other children. You would just be giving her back something that she should have had. It is not like having breast implants, or getting your child's ears pierced. It will help her selfe image and help her have the most normal childhood possible.
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  #20  
July 12th, 2006, 10:20 PM
MommieinNC's Avatar Mega Super Mommy
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Ditto to: I would say go for it, absolutely, it will improve her quality of life and she probobly wont even remember any of the pain b/c she is so young.
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