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Forum: Children with Special Needs


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December 17th, 2008, 09:43 AM
docsmomma's Avatar Platinum Supermommy
Join Date: Apr 2005
Location: Anaheim, CA
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Hello ladies. My name is Traci and I am mom to 6 yr old David, 3 yr old Melanie and 6 month old Joey.

I spent the past year telling the peds that something wasn't right, Melanie wasn't talking. They finally started doing something a few months ago and we got her hearing test back. While she passed the initial hearing test, there was alot of pressure behind her ears, especially her left one. Right before she turned 3 I contacted the school district. They did their evaluations, and recently got back to me. They did another hearing test which shows she's hearing less, though she still passed, and the pressure in both ears has increased. They then offered her a spot in SDC preschool. We toured the preschool classroom on Monday and as soon as her IEP comes in we're starting. In February we're supposed to get tubes in her ears with the hope that this will clear up the pressure and help her hear better.

My oldest was also speech delayed but his had nothing to do with his hearing. We have been told to try using sign language with Melanie and we've started learning it (I had the basics but DH didn't know any of it). We have a friend of mine who specializes with teaching kids, teaching both her and us, and we are teaching our oldest as well.

This has been a rough road for us. DH is blaming himself because he did the same thing. I'm just angry that they ignored me for so long.
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December 18th, 2008, 02:17 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
Welcome Traci!

Thanks Yvonne (Jaidynsmum) for my beautiful siggy!

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December 20th, 2008, 06:06 AM
Platinum Supermommy
Join Date: Jun 2006
Location: New York
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Welcome Traci! Sorry you are going through all that with Melanie. Mom's always know best and I had people ignore me too when I knew there was something wrong with my son. WTG for not giving in. Welcome to the board.

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December 22nd, 2008, 01:04 PM
docsmomma's Avatar Platinum Supermommy
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Thanks ladies for the welcome. We found out more stuff on Thursday when we talked with the District Psycologist about all her testing. She is apparently delayed in other areas as well (which will be discussed in the IEP meeting) and I am just frustrated with not knowing anything at this point.
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April 7th, 2009, 11:03 AM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
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I'm re-welcoming you
I would be upset also. Doctors need to listen to parents more often, we do know our children better than anyone. ((Hugs)) to you, hon.

Thank you, tasha_mae, for my siggy!
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April 7th, 2009, 12:47 PM
kittycat's Avatar Platinum Supermommy
Join Date: Jul 2004
Location: Chicago, IL (W Burbs)
Posts: 12,488
Thought I would also say hello - and see how things went on school and with the tubes.

My older boy, Kyle, has had 3 sets of tubes for problems similar to what you described. In our case, the drs were ignoring his seizures and saying it was his ears/not hearing. His problems are finally better - but we might be on the watch for another set of tubes, due to a reoccuring infection the past two months.

I do hope your daughter was able to get in to the IEP school program. It has been one of the best experiences for our son, and I"m sure you're daughter will just love it too. You would be amazed at how resilient and quick to learn the kids are, once their problems have been identified.
DH (44) ~~ Ian 2/22/07 37wks ~~ Kyle 12/30/03 23.6wks ~~ Konner (Twin Angel) 12/26/03, 23.3 wks
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April 7th, 2009, 01:53 PM
~~~Sara~~~'s Avatar Platinum Supermommy
Join Date: Apr 2007
Location: So. California
Posts: 5,770
Hi Traci, It's so true mothers know best and I am glad you pushed to get Melanie what she needs.

I encourage all of us to keep bugging one doctor after the next until we get our kids what they need.

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