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Forum: Children with Special Needs


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April 29th, 2009, 08:44 AM
Daisyfields's Avatar Platinum Super Mega Mommy
Join Date: Apr 2007
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I've been losing my hair rapidly, at a pace that if it continues, I will be bald, even my eye brows are almost non-existent.

I've been sick since 1996 w/ my diagnosis & permanently disabled, since 2002 because of it, I have to take a lot of medications, 16 pills per day to be exact, but I don't have an illness that would cause hair loss.

Because of my hair loss, I had my thyroid checked, blood work to the max & still...nothing. I don't know what to do. My hair is baby-fine, always been that way, but I had a lot of it. Now it's different & every time I wash it, chucks fall out, not even exaggerating. Chunks. Then through-out the day, my hair will fall out, and not just a little, I mean strands are all over my shirt, bed sheets, floors, it's not the normal hair loss. I've talked to my OBGYN, it's no longer an issue of hormones from having my children.

I am freaking out about the hair loss. At the pace of the way it's going, I'll be bald by the end of the year. No new hairs are growing in either. I've tried all the special shampoos & nothing works.


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April 29th, 2009, 11:19 AM
iamkc's Avatar Platinum Supermommy
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I'm so sorry! I'd be freaking out, too! I don't know your diagnosis, though. I'm sorry. I've been reading through trying to find it. I know that I've had this happen from stress. I know, sounds like the cause of everything, but really. Huge chunks of my hair (and I have dark hair with WHITE skin!) fell out. It took well over a year to grow back. I've heard of several imbalances that can do it, too. Have you seen a trichologist? My friend used to go to one (she lost chunks of hair, eyelashes, eyebrows, and hair all over her body) who helped her. Her eyebrows and lashes are pretty much gone for good, but her hair is VERY thick and full now! I hope that someone has answers for you! (((HUGS)))
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April 30th, 2009, 08:24 AM
Daisyfields's Avatar Platinum Super Mega Mommy
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I've never heard of a trichologist, I guess that's something I should look into. I need to Google it.

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April 30th, 2009, 08:52 AM
~~~Sara~~~'s Avatar Platinum Supermommy
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I'm sorry, I hope your doctors can help you get answers.

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April 30th, 2009, 10:16 AM
Ditzzy's Avatar Stupid Lamb;)
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If you don't mind me asking, what did they diagnose you with? 16 pills is a lot. Do any of them have hairloss as a side effect? It almost sounds like you're on a chemo drug.

((Hugs)) I'm so sorry you're scared. You have enough to deal with. I know stress can cause hairloss, but not to the degree you're speaking of.

Thank you, tasha_mae, for my siggy!
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May 1st, 2009, 06:59 AM
Daisyfields's Avatar Platinum Super Mega Mommy
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I have a few different things going on w/ me. I know I have RA, I have constant pain which they treat w/ anti-inflammatory meds, muscle relaxers and anti-depressants. I also have severe anxiety disorder, which I have to take anti-anxiety meds, then I have a sleep medication to help w/ my pain & anxiety. I am not on Chemo (thankfully)... but I take lots of stuff, I feel like I am sometimes. I've added biotin (hair/nail supplement), Omega-3 (depression & overall health supplement), Cod liver Oil (supplement), and then a multi-vitamin for women. The rest is all the meds for my current diagnosis'.

I've been thrown back & forth from specialist to specialist about the potentials of having M.S., Lupus, but they are hard to diagnose. I can't have an MRI, I have metal implants in my ears, I can't have a Spinal b/c I have severe scoliosis, so M.S. is hard to diagnose w/ not being able to get those tests. I have a lot of numbness in my limbs, I hear tones in my head/ears & get electric shocks in my head w/ the tones & then my vision blurs & I lose the color in my sight, I see all gray, lasts about 3 min. but it feels more like 30. When my period approaches, it intensifies. It's crazy.

As I mentioned, I have seen A LOT of different specialists, everyone tells me something different but I am not going to give up. I was told by one of my doc's that "autoimmune diseases" are hard to diagnose, it can take up to 8 yr's before you figure it out. They told me "not to give up"...to "go to the next doctor & the next one, go to all of them until you've run out of doctors, don't stop w/ the first one or two, don't let them blow you off". Which, 2 of them have already. I know something is wrong. I know it's more than just stress. I know it. I feel it. I just don't know what it is...YET.


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