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Forum: Children with Special Needs


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View Poll Results: Would you give your child the H1N1?
Yes, and I have & would if it were offered to the child(ren) 2 50.00%
No 1 25.00%
Yes, I already got the vaccine for my child. 1 25.00%
I do not believe in vaccines (no reason necessary) 0 0%
Multiple Choice Poll. Voters: 4. You may not vote on this poll

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November 11th, 2009, 10:03 AM
Daisyfields's Avatar Platinum Super Mega Mommy
Join Date: Apr 2007
Location: In the enchanted forest
Posts: 5,257
As you ladies know, I am about to embark on a surgery that will keep me from being able to care for my kids w/ out help. My help will arrive on the 19th from VA. (thank you God!)

Cooper, my SN' child, has been through a lot. He has never had a true diagnosis or reason for his seizures & episodes that happen "just whenever"... Cooper "was" seeing a neurologist at UMASS Boston Clinic. I say "was" b/c she couldn't find anything & we had to force an MRI on him after endless pleas. She just wasn't doing much to "help"... as mom who has a good gut-instinct, I know, there is "something" else wrong w/ Cooper. I know this. Just like I knew, that there was "something" else wrong w/ me, but no one, countless neurologists, specialists, you name it, I had seen them, no one, had answers, they dismissed me & said to have less stress or that it must be "all in my head"... well, they were right. I have a bone disease that has taken over my temporal bone, and now b/c the disease spread so far, I have spinal abscess/fluid coming out of my left ear.

Here's where I have a problem. I got a call from Cooper's "former" neuro clinic this morning. Telling me that they wanted him to get the H1N1 shot. I had asked Cooper's pediatrician not too long ago & he said that he woudlnt' give it to him b/c the CDC had only offered the shots to people who were pregnant, have children under the age of 6mos., or work in the medical field. Cooper "did" get the regular flu shot in Sept., nothing bad came out of it.

Had the neuro clinic not called me, I wouldn't have been thinking or asking. My concerns are "do I give him the H1N1 shot?" I am torn & here are the reasons:

This is a new vaccine, I'm scared of something so new w/ not enough data
usually when Cooper gets a "regular" vaccine, he has a set-back & doesn't walk or talk well, w/ the exception of his last flu shot in Sept.
Cooper is still undergoing many test, trying to find out "what" is wrong w/ him & how to treat him.
I am about to have MAJOR surgery on the 23rd, if something bad happens to Cooper, I will not be able to care for him.
The vaccine is given in 2 doses, and the reason given is b/c THEY (CDC/Medical) have no idea what the appropriate amount of this vaccine "should be" given, to me, that's not enough data.
My DH wants Cooper to get the vaccine, he feels that if it's offered, to do it.

The vaccine is scheduled this upcoming Saturday at 11am. I can cancel if I want, which is why I did make the appointment.

What do I do? Do I give him a vaccine w/ such little data? Do I give him a vaccine knowing the he COULD get another set back, and potentially never recover from it? Do I give him this vaccine & it gives him the H1N1, and he's really sick (my 9 yr old just had H1N1), and I can't care for him b/c I am recovering from surgery on the 23rd of this month?

I know you ladies cannot answer all these questions or make the decisions for me. But I need "something" some sort of feedback. What you would do if you were me. Just let it out & let me know what YOU would do if YOU were me.



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November 11th, 2009, 10:56 AM
docsmomma's Avatar Platinum Supermommy
Join Date: Apr 2005
Location: Anaheim, CA
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We have been offered H1N1 for the whole family because of Joey. Joey already got his first dose, as have I, DH and the older kids get it next week.

The fact is, the county where I live had 8 h1N1 confirmed deaths last week alone, and over 30 since October 1. With Joey's lungs putting him in a risk category, and his immune system putting him even more at risk, i can not risk it. And i don't typically vaccinate. however, had he not been on chemo I would not vaccinate at all, for the simple fact that there may be correlation between vaccines and "flare ups" of LCH.
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November 11th, 2009, 11:19 AM
Platinum Supermommy
Join Date: Mar 2005
Posts: 8,671
If you youngest has already had it, then cooper has already been exposed to the virus so his body has already begun to build antibodies against it. With all the risks involved, I wouldnt do it.

My children did not/will not be getting the vaccine. They have both had the virus and recovered. At this point there is no point in any of us getting it since we have all already been exposed

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November 12th, 2009, 09:34 AM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
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My kids have all had it.

Thank you, tasha_mae, for my siggy!
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November 12th, 2009, 09:57 AM
Platinum Supermommy
Join Date: Mar 2005
Posts: 8,671
the shot or the flu hope?

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