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Forum: Children with Special Needs


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April 21st, 2010, 06:46 AM
quietsong's Avatar Just Another Slacker Mom
Join Date: Aug 2006
Location: Missouri
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How many specialists follow your child?
How easy or hard are they to get in to see - and how often do you have to see them?

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April 21st, 2010, 07:12 AM
~JustAngie~'s Avatar ~Let your colors burst~
Join Date: Jan 2006
Location: Kentucky
Posts: 6,279
Joey sees a Neurologist, Neurosurgeon, and a Gastroenterologist. It's pretty easy to see them, but we haven't needed to see them for any other reason than the standard checkups.
~Angie, mommy to 2 kiddos~

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April 21st, 2010, 12:57 PM
Effervescence's Avatar Platinum Supermommy
Join Date: Sep 2008
Posts: 6,791
We've nixed the ENT and audiologist, so it's down to the orthopaedic surgeon and the 2 PDD specialists. We see the orthopaedic surgeon weekly, but if we need to see him at other times in the week it can be tough to get in. It took us a while to get the appointment for his diagnosis. One of the PDD specialists, we see weekly as well. She's easy to get an appointment with, and she is through the EI program so we see quite a bit of her just from being around. The other PDD specialist, well we've been waiting since March to see him. He comes up to Bowling Green from Columbus once a month, and his time here is always booked solid so it's pretty tough to get in. May 17th is our first eval with him

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April 21st, 2010, 02:18 PM
greenchild's Avatar Platinum Supermommy
Join Date: Jul 2006
Location: MN
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We have an Endocrinologist, only have to see him once per year for a checkup . . . really not even that, he just wants Kaiden's thyroid checked yearly and we can do that in the pedi's office - so just see him if there's a problem.

We have a meet & greet with an audiologist on May 7th, she said ideally Kaiden should have his hearing checked every 6 months until he's 3, even if he has no problems or hearing loss.

Talked to an ENT, Kaiden's never had an ear infection and using GSE the longest a cold has ever lasted with him is 3 hours. So they said they'd like to meet him before he starts school, but they don't need to see him sooner unless a problem comes up.

He has seen a neurologist, but I doubt we'll go back. If we do go back, it won't be to him.
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April 21st, 2010, 03:32 PM
Platinum Supermommy
Join Date: Mar 2005
Posts: 8,671
Hematology-Both Boys
GI-Both Boys
ENT-Both Boys

I feel like I am forgetting someone and I'm sure I'll remember. All of these we see at least for 6 month intervals. We are official patients of Opthomology but that is consultative just so we dont have to get a referral if we have any more concerns. We also have pending referrals for DDBP(for Ty) and the Sleep Clinic(for Layne)

There are other clinics we have been to like the Apraxia clinic, but they don't technically follow him, they leave that to the ped and therapists.

Wow, it seems like a lot when I write it all out. LOL

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April 21st, 2010, 06:07 PM
Ditzzy's Avatar Stupid Lamb;)
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Location: OH-IO
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Oh wow.......

Otolaryngology/Aerodigestive team (for her airway only) - every 3-4 mths (easy)
Neurology - 4 mths (easy)
Pulmonology - 4-6 mths (easy)
GI, normal ENT, and genetics (with feeding team) - 2 mths (so/so))
Orthopeadics - 3 mths (not easy to reschedule)
Neurosurgery - 6 mths (easy)
Rehabilitation Dr - 4 mths (easy)
Opthalmology - 3 mths (easy)
Infectious Disease - 4 mths

We are switching out infectious disease for rheumatology soon.

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April 23rd, 2010, 11:37 AM
Platinum Supermommy
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we did see a GI but she has outgrown the reflux luckily.

we only see the Vision educator and mobility therapist. We have an ECI guy but he is basically just the pencil pusher now and will come when we do the ECIP thingy mabobs

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April 23rd, 2010, 12:06 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
Developmental ped..... every 6 months (easy)
ENT...... every 6 months-year (ok)
cardiology... yearly (ok)
audiology.... every 6 months (not too bad)
ophthalmology.... yearly (ok)
urology as needed now (ok)

all in all, pretty easy to get in to see.

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April 23rd, 2010, 05:28 PM
Platinum Supermommy
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oh I didn't put, we see ours every other week and they come to the house so obviously easy to see lol

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