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Forum: Children with Special Needs


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April 28th, 2011, 06:30 PM
sweetmelissa's Avatar Live.Laugh.Love.
Join Date: Jan 2007
Location: Some Beach in Florida
Posts: 9,613
So we had Rachel's 2 year check up (late I know) today. She is 23lbs and 31inches. She gained only 1 lb since December. Her doctor looked at me and told me to skip dinner and just give her dessert. We all laughed. lol. I love her doctor he's goofy like that and Rachel can actually get through an appointment without screaming.

Well after talking to him about her walking and how she falls constantly. He suggested that we get Rachel a walker to help her out. He said he's going to go through CMS (Childrens Medical Service) to see how we go about getting one for her -- Rachel is his first "super special" patient -- his words not mine. So he's not exactly sure whats the best way to attain one for her.

He's going to call me tomorrow or Monday with what steps we need to take. He did say that he's going to try to figure out a way to get one thats not "old lady-ish".. Again his words not mine. He said something very pink and maybe with padding around it so if she falls she's not hitting her head on metal. Again I LOVE this guy.

I just needed to share with others who understand. My parents were kind of like "but she walks - why does she need one?" Yes she walks fine in the house but out and about where she's so busy looking at stuff she forgets she's walking & that she needs to balance herself.
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April 28th, 2011, 09:09 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
Your pedi sounds great.

Does Rachel have a PT? Ellie's PT helps us get all her equipment. She's a great resource.

I'm pretty sure there are models of pediatric walkers that you can special order in fun colors. The walker that Ellie uses unfortunately only comes in one color per size. She thought it was a boy color so we spray painted it purple. She loves it now.
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April 29th, 2011, 09:11 AM
Join Date: Mar 2011
Location: SE Maryland
Posts: 63
Deffinantly sounds like a good doc!

I can't really help much with the walker, but when one of DDs docs are talking about something for her i tend to look around at adaptivemall.com just to see whats out there. They usualy have a lot of interesting stuff, heres the page for walkers Seats for Kaye Reverse Walkers - Kaye Anterior Walker - Kaye Walker - adaptivemall.com

I tend to have the same kind of mind set as your parents i think. DD has a not of trouble with balance and energy and i'm still trying to wrap my mind around the fact that she is just getting way too big for her little unbrella stroller lol.

Hope you can find something super cute for her.
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May 2nd, 2011, 10:45 AM
Ditzzy's Avatar Stupid Lamb;)
Join Date: Sep 2007
Location: OH-IO
Posts: 9,023
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Ava used a walker for a long time. You can even see her use a gait trainer w/ her PT on my fb. It helped so much, it really did. We payed OOP for the kaye walker, but we borrowed a gait trainer from our EI program. (She used both).

((Hugs)) I would gladly give you Ava's walker but Ava was a lot smaller at 2, so I'm not sure it's the correct size. (size 1/2)

Thank you, tasha_mae, for my siggy!
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May 5th, 2011, 11:24 AM
C&K'sMama's Avatar Platinum Supermommy
Join Date: Sep 2008
Posts: 6,150
Originally Posted by mamma_anna View Post
Does Rachel have a PT? Ellie's PT helps us get all her equipment. She's a great resource.
ditto for us. We have an old lady walker, but I've seen several of them painted and if Carrie would have used hers longer, we would have done it too

"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
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