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Forum: Children with Special Needs


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August 15th, 2011, 08:17 AM
challowell's Avatar Mega Super Mommy
Join Date: May 2010
Location: Caldwell, Ohio
Posts: 2,173
I'm Christina and I am Mom to Rachel,3 and Jamie,2. Jamie has strabismus with intermittent exotropia. Her eye problems are caused by her brain not being able to put the two images her eyes see together and so the brain will focus more with one eye and let the other drift. We first noticed the problem at two months old but our pedi thought it was normal baby eye wandering so we waited untill she was a year old and took her to a local eye doctor who told us she had a big nose but nothing was wrong with her eyes. In March we finally got a eye doctor who actually took the time to look and found the problem and on July 13 she had eye surgery to correct her eyes.

Now that you got the back story here is the question part. We were told we should see full results of the surgery in a month on how her eyes heal and if the drifting will continue. Well her eyes are drifting again about half the distance they did before surgery and she is tripping over everything again. It is hard because we had two good weeks of no tripping and her feeling everything like she was relearning everything she saw and it feels like I am at square one again. I go Back to her eye doctor in October. He last saw her 10 days after the surgery and has not seen the drifting start back up. Should I call her eye doctor to let him know her eyes are drifting again or should I wait untill the appointment?

Also we noticed Jamie is behind in things like hand eye coordination and we were told to get her nesting toys. She has nesting toys but she is not a fan of them. She will try to put the blocks together and she can't line them up enough to fit them in. She gets frustrated and throws them down and will go to something else. Should I encourage it more or wait to see if her eyes are going to need more work?
Thank you peimum for my beautiful siggy.
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August 15th, 2011, 10:07 AM
greenchild's Avatar Platinum Supermommy
Join Date: Jul 2006
Location: MN
Posts: 15,839
I'd call the dr right away, if nothing else just to let him know what's going on and that you have concerns. He may want to see Jamie earlier, maybe not??

On the toy front, I'd probably try to encourage it a little more, but if you get nowhere with that, definitely bring it up to the dr.
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August 15th, 2011, 03:48 PM
C&K'sMama's Avatar Platinum Supermommy
Join Date: Sep 2008
Posts: 6,150
Hi I would call the doctor absolutely! He should at least know so that he can decide whether she needs to be seen earlier.

Also I wouldn't push the toy. If she's relearning how to see (when her eyes wander it would cause double vision), she's probably struggling to adjust to her new form of depth perception. I would let it come. until then you can do little things in the day... anything that would have her putting something into something... like "spilling" the chips and having her put them back into a bag, so that she's getting practice without being pushed.

"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
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August 16th, 2011, 07:16 AM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
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I agree. Call the doc right away. He may want to see her sooner since she is hacing drifting issues.

I would hold off on fine motor coordination... I had a reaction to a medication that affected my brain for about 2 months...it in turn affected my vision giving me double vision for about 2 months. It was incredibly difficult to do simple things like get my toothbrush in the hole after I brushed my teeth with two eyes open. If I covered one eye I could do it fine but with input from two eyes that were not lined up it was incredibly difficult for me to determine the actual location of anything... Gross motor was fine though. If she ever wears a patch on her good eye that is when I would try the toys. When her brain only has input from one eye it will be much easier for her to work on her fine motor skills in the hand/eye coordination dept. I would really suggest not to push it unless she only has input from one eye...

Thanks .:Shortcake:. for my GREAT siggy.

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August 19th, 2011, 06:50 AM
challowell's Avatar Mega Super Mommy
Join Date: May 2010
Location: Caldwell, Ohio
Posts: 2,173
I called in and left a message for him. Hopefully he will call back soon.
Thank you peimum for my beautiful siggy.
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