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Doctors assuming you "use the medical system"

Forum: Children with Special Needs


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November 10th, 2011, 12:13 PM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
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When we went to see the GI at Cinci...granted we apparently had the only doc there that would do this... the GI was irritated that I had switched through so many GI's for Danny. "Well I know all of those doctors." was the response I got. I posted in another thread about this but I have a question. Have you ever had a doctor/s assume you are just using the medical system and if one doctor doesn't do what you want them to you will just go somewhere else to get it so there must not be anything wrong with your child....you just think there is and refuse to do anything because of that? I am so sick of this and we finally found a local doctor that is good and understands that he really does have issues and everytime I have switched it has been justified and now she is moving to MIAMI! The nutritionist in the office said to try the PA's in the office but if they don't work out we can always go either to Vanderbilt for our regular GI or Cincinnati. Right now he has to go once per month so I don't see either of those being logical. Ugh... I am hoping the PA's work out and that we can get a meeting before hand to get a feel of what she is like...


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November 11th, 2011, 01:32 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
We've been really lucky with most of our doctors. Haven't had any medical docs ignore anything or tell us we're making it up but her physical problems are pretty obvious.

People outside the medical community, like school psychologists and teachers have told us some rediculous things before though. It can be soooo frustrating. They obviously don't know my kid! We don't have to deal with those people anymore though. Thank goodness!

I really hope the PA's will work out for you. You and Danny are certainly going through a lot right now. Praying things will get easier soon.

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November 11th, 2011, 01:59 PM
challowell's Avatar Mega Super Mommy
Join Date: May 2010
Location: Caldwell, Ohio
Posts: 2,173
Our first eye doctor for Jamie told us she had a big nose that made her eyes look crooked. We waited about 6 months to ask the pedi for a second opinion which led to us finding out her eye problems. I am glad to have been heard but now I do have doubts about our local doctors.
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December 5th, 2011, 01:05 PM
alicenwonderland's Avatar Platinum Supermommy
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Location: Rochester NY
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Its hard to find the right doc. We wasted a lot of time and might not easily get an appropriate diagnosis due to our GI and our previous allergist. They were really hands off and put Teddy on neocate without investigating further. Now Teddy has been on neocate almost a year, which means scoping for EE will be difficult. It took an aggressive allergist who actually sought US out to finally get the ball rolling. He called our GI and persoally requested our testing.

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December 5th, 2011, 04:12 PM
C&K'sMama's Avatar Platinum Supermommy
Join Date: Sep 2008
Posts: 6,150
Almost every ophthalmologist seems to dismiss us as being hypochondriacs.

We had a developmental pediatrician who was like that. "you've had multiple diagnoses and then proved them all wrong, if you're here for another one, I won't give it to you. "

"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
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