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Forum: Children with Special Needs


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January 20th, 2012, 10:41 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
:cr y::ex cited:: greengrin:n ethumbup: :bitenai l:

Can you tell from my random asortment of smilies that I'm feeling a little overwhelmed right now?

After 24 days in the hospital fighting a severe bacterial infection in both lungs, my sweet girl is finally back home where she belongs!!

I've wanted to post this update all day but we haven't exactly fallen into much of a routine yet. I can't get much more than a few minutes at a time on the computer.

My posting will probably still be sporatic for a while as Ellie continues to heal.
She needs breathing treatments every 2-3 hours around the clock and she's on oxygen which I'm still getting used to handling without help from the nurses. (Yes, I convinced the doctors to let us do this. Not at all regretting that decision, but still...)
And she's still not eating much. I can sometimes get her to eat a whole meal (a whole "Ellie sized" meal that is) but it's still a work in progress. She's lost 4lbs and completely fallen off the growth chart for weight. Her doctors are concerned by this. I'm trying hard not to be. I have enough to worry about.

As far as walking and talking and everything else....she's regressed A LOT. I was told to expect this. It makes sense with how sick she's been. But it's still hard to see after all the progress she's made this year. I'm praying she'll make up for it soon.

I want to say sincerely, thank you all so much for your prayers and support.
Your responses to my last post were especially helpful. We'd probably still be in the hospital if I hadn't taken your advice to fight the doctors a little.

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January 24th, 2012, 07:54 AM
C&K'sMama's Avatar Platinum Supermommy
Join Date: Sep 2008
Posts: 6,150
THAT IS AWESOME!! Yay for being home! It sounds like you guys have a lot to overcome still, but I'm so happy you got to take her home!

"Disability is not a brave struggle or ‘courage in the face of adversity.’ Disability is an art. It’s an ingenious way to live."
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January 25th, 2012, 02:06 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
Thanks Alycia.

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