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Forum: Children with Special Needs


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June 10th, 2012, 03:09 PM
mamaperry's Avatar Mega Super Mommy
Join Date: Sep 2009
Location: Sugar Land, TX
Posts: 1,645
I have a sweet lil 3 month old boy named Reece, and he was born with Spina Bifida lipomyelomeningocele. Next week he will be under going a long surgery to unether his cord and remove the fatting lesion. Are there any other Spina Bifida mommies here?

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June 11th, 2012, 09:58 AM
Mega Super Mommy
Join Date: Jul 2008
Location: Richlands NC
Posts: 3,348
Send a message via Yahoo to Tinky
I do not, but just wanted to say welcome

Robert 17,
Heaven-Leigh 15
(TL 1.11.98)
(TR 10.26.06)
Raymond 5
Alexavier 3
Stoney 2
Korbyn 28 week miracle 5/17/13
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June 11th, 2012, 03:20 PM
mamma_anna's Avatar Mega Super Mommy
Join Date: Feb 2011
Posts: 1,953
Yep. You're definitely in the right place. to the board!

I don't know of any moms in here who are dealing with spina bifida specifically but its a very diverse group. We're dealing with a wide range of special needs and we all have things in common.

I'm Anna. Mamma to 4 beautiful girls. Meagan is 16, Abbey's almost 14, Kayla's 9 and Ellie is 6.
Ellie has multiple special needs including cerebral palsy, chronic lung disease and severe anxiety.

Praying for Reece and a successful surgery. to you! I hope you'll stick around and continue to post in here so we can get to know you better and hopefully be of some support. Keep us posted on the surgery.

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June 11th, 2012, 08:34 PM
Mega Super Mommy
Join Date: Jun 2007
Location: Knoxville,Tennessee
Posts: 3,593
Send a message via AIM to i3ai3ydanny
Welcome! I am Sarah, mommy to DS Danny (almost 5). Danny has several medical issues but not spina bifida. His father had a mild form of it and my cousin has a baby that had the unborn surgery to correct hers. I hope the surgery goes well and that you will stick around!

Thanks .:Shortcake:. for my GREAT siggy.

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August 10th, 2012, 05:41 PM
Super Mommy
Join Date: Oct 2008
Posts: 503
my nephew was born with this type of Spina bifida......he is now almost 16 years old and if you didnt know him would never be able to tell he was born with this....he has had to have many surgeries to untether his cord through out the years and has learned to self cath.....but he dates, plays sports and makes straight A's. Good luck with your little boy!
Wife to Jeremy(33)
Mommy to:
An Angel (Miscarried July 17, 2006)
Baby BOY!!!!(due Dec. 21, 2013)

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