Log In Sign Up

**Cardiac Info & Links**

Welcome to the JustMommies Message Boards.

We pride ourselves on having the friendliest and most welcoming forums for moms and moms to be! Please take a moment and register for free so you can be a part of our growing community of mothers. If you have any problems registering please drop an email to [email protected].

Our community is moderated by our moderation team so you won't see spam or offensive messages posted on our forums. Each of our message boards is hosted by JustMommies hosts, whose names are listed at the top each board. We hope you find our message boards friendly, helpful, and fun to be on!

Reply Post New Topic
  Subscribe To Children with Heart Conditions LinkBack Topic Tools Search this Topic Display Modes
February 7th, 2009, 09:05 AM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229
Please feel free to post any helpful info or links you have on pediatric cardiac conditions.

Here's what I have.....
I will continue to update as I find more info.

Diseases, conditions & treatment

Glossary of cardiac related terms


Info provided by momma2jude

Cardiovascular diseases, including stroke, are our nation's No. 1 killer. To urge Americans to join the battle against these diseases, since 1963 Congress has required the president to proclaim February "American Heart Month." (Note this is not "Heart Month" or "National Heart Month.")

The American Heart Association works with the administration to draft and sign this annual proclamation.

CHD Awareness Week is February 7th-14th.

Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.

Despite the fact that CHD affects millions of families, a relatively small amount of funding is currently available for parent/patient educational services, research, and support.

Facts about CHD

*Sometimes during early pregnancy, a baby's heart fails to form properly, resulting in structural abnormalities known as Congenital Heart Defects. Although some defects are genetic, in many cases the cause is unknown.

*Although some babies will be diagnosed at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, CHDs are not detected until adolescence or adulthood.

*Some CHDs may not require treatment other than periodic visits to a Pediatric Cardiologist. Others can be treated with medications or repaired with surgery and/or procedures.

*Complex defects may require several surgeries and are never really "cured".

*Many cases of sudden cardiac death in young athletes are caused by undiagnosed CHDs and Childhood Onset Heart Disease.

*It is estimated that more adults than children are living with congenital heart disease, and this population is expected to grow by 5% each year. Yet, many adults with CHD are not receiving adequate ongoing care from trained specialists.


Parents should be alert to the following symptoms in infancy:

*Tires easily during feeding (i.e. falls asleep before feeding finishes

*Sweating around the head, especially during feeding

*Fast breathing when at rest or sleeping

*Pale or bluish skin color

*Poor weight gain

*Sleeps a lot - not playful or curious for any length of time

*Puffy face, hands, and/or feet

*Often irritable, difficult to console

Some children with CHDs may not have any symptoms until later in childhood. Things to look for include:

*Gets out of breath during play

*Difficulty "keeping up" with playmates

*Tires easily/sleeps a lot

*Change in color during active play or sports (looks pale or has a bluish tint around mouth and nose)

*Frequent colds and respiratory illnesses

*Slow growth and weight gain/poor appetite

*Complains of chest pain and/or heart pounding

If your child has two or more of these symptoms, talk to your pediatrician about a referral to a Pediatric Cardiologist


For more information on CHD please visit the following sites:


CHD petitions :

http://www.gopetition.com/petitions/media-...ss-for-chd.html (for awareness in the media)

http://www.ipetitions.com/petition/CHDpulseox/ (for requiring routine pulse-ox testing in newborns)

Request a quilt block in honor of you heart child: http://www.chdquilt.org/index.html

We had one done for Jude when he was a baby, his on quilt #35, row one, block 2

Thanks Yvonne (Jaidynsmum) for my beautiful siggy!

Reply With Quote
February 7th, 2009, 07:42 PM
MellieB's Avatar Platinum Supermommy
Join Date: Nov 2005
Location: Melbourne, Aust.
Posts: 64,110
Heartkids Australia... has info and stories of heartkids


Thanks to Claire1979 for the amazing siggy.

Tweet Tweet Facebook Bloggin'

Our Angel Baby on Facebook

Reply With Quote
April 15th, 2009, 05:10 PM
stacyp's Avatar Mommy to Andrew & Luke
Join Date: Nov 2005
Location: OHIO
Posts: 17,229

ASD~ Atrial Septal Defect

CHD~ Congenital Heart Defect

CHF~ Congestive Heart failure

HK~ Heart Kid

HLHS~ Hypoplastic Left Heart Syndrome

IAA~ Interrupted Aortic Arch

MVP~ Mitral Valve Prolapse

PA~ Pulmonary Atresia

PDA~ Patent Ductus Arteriosis

PFO~ Patent Foreman Ovale

PPM~ Permanent Pacemaker

PS~ Pulmonary Stenosis
•valvar pulmonary stenosis - the valve leaflets are thickened and/or narrowed
•supravalvar pulmonary stenosis - the pulmonary artery just above the pulmonary valve is narrowed
•subvalvar (infundibular) pulmonary stenosis - the muscle under the valve area is thickened, narrowing the outflow tract from the right ventricle
•branch peripheral pulmonic stenosis - the right or left pulmonary artery is narrowed, or both may be narrowed

SVT~ Supraventricular Tachycardia

TA~ Tricuspid Atresia

TGA~ Transposition of the Great Arteries

VSD~ Ventricular Septal Defect

Thanks Yvonne (Jaidynsmum) for my beautiful siggy!

Last edited by stacyp; April 16th, 2009 at 01:40 PM.
Reply With Quote

Topic Tools Search this Topic
Search this Topic:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

All times are GMT -7. The time now is 03:16 PM.

Powered by vBulletin® Version 3.8.9
Copyright ©2000 - 2018, vBulletin Solutions, Inc.
Search Engine Optimization by vBSEO 3.6.0