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Neurology Appointment

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October 29th, 2008, 05:31 PM
samylaine's Avatar Super Mommy
Join Date: Jul 2006
Posts: 534
So the neurologist talked with me in length about Nathan's NICU stay and my concerns... I even brought pictures for him to look at that showed how small he was and how bad his oxygen levels sometimes were..

He did a few things with Nate and said Nathan is pretty hypotonic... he has low muscle tone and muscle control. Which is why he scored a 0/12 on the motor skills assessment at school.

He's also a little concerned about Nathan's weight/height.
I told him I had been concerned as well but the pediatricians keep telling me as long as he is growing it's nothing to worry about it.

So he ordered a full endocrine work up (thyroid, prolactin, testosterone) and is checking growth hormones. If those are off it could account for the hypotonia.

We go back on November 11th for a brain wave scan thingy and am EMG test.
Then back on November 26th for all the results.
He says if anyone asks just tell them Nathan has numerous developmental delays..

I said * I already do*. We go to his first OT session on Friday morning!
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October 30th, 2008, 02:38 PM
samylaine's Avatar Super Mommy
Join Date: Jul 2006
Posts: 534
Nathan's been authorized 13 visits for physical therapy and 7 for occupational therapy.. all here in town at North Texas Rehabilitation Center so we wont have to drive but 15 minutes for those visits!
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October 31st, 2008, 11:23 AM
samylaine's Avatar Super Mommy
Join Date: Jul 2006
Posts: 534
We had the OT evaluation this morning and They've recommended that Nathan receive physical therapy and occupational therapy 2x a week for at least 6 months...
He scored very low on the assessment today... he pretty much has the physical strength of a 16-18 month old instead of a 4 yr old
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November 11th, 2008, 07:53 PM
~Coley125~'s Avatar Mega Super Mommy
Join Date: Apr 2006
Location: idaho
Posts: 3,641
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I'm glad that you are getting some intervention set up for him. What is his diagnosis, or does he have one??
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November 11th, 2008, 09:09 PM
samylaine's Avatar Super Mommy
Join Date: Jul 2006
Posts: 534
all of Nathan's issues are directly related to prematurity.. he was born when I was 24 weeks pregnant...
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