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January 8th, 2011, 01:08 PM
Join Date: Jan 2011
Location: South Carolina
Posts: 8
I just ran across this board today...Love how the topics are sorted. Anyway, I have a daughter who will be 16 in March who is blind if anyone needs any advice or has any questions on anything with your younger ones. She was born at 25 weeks and had vision until just after she was discharged. Her blindness is from Retinopathy of Prematurity (ROP).
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January 9th, 2011, 07:14 AM
sblades19's Avatar Mega Super Mommy
Join Date: Aug 2009
Posts: 2,930
Hi, I don't post here very often bc it is a very slow board! My three and a half year old was born with congenital nystagmus but recently diagnosed with Leber's Congenital Amourosis in April. It is a retinal degenerative disease. She has very functional vision but as far as acuity, we are still unsure. She get's around really well, and seems to improve the older she gets. We moved to Florida this summer so she could (and is) attending the Florida School for the Deaf and the Blind! It is wonderful. They also have great resources here for people with vision loss.

I guess at this point, becase she is at the point where she wants to go play with others, my biggest worry is how other, normal sighted children will treat her. There has been a mixture of behaviors, more good than bad...but there have been a couple of incidents where some kids were being mean to her and it breaks my heart. She is beautiful and sweet...I just want to protect her from all those mean ugly kids who do hear it from me when they treat her meanly. I know it my sound silly, but it is a real concern of mine. I don't ever want her to feel sad. BC right now, to her, it is normal. She has no idea that she is "different."
Anyway, how was your experience watching your daughter grow and develop?

Special thank you to Graysmama for my awesome siggy!

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