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February 11th, 2008, 03:04 PM
JennO's Avatar Mega Super Mommy
Join Date: Jul 2006
Location: Texas
Posts: 2,168
I know I have posted a bit, but I wanted to make a bit of a more formal introduction. I am Jenn, mom to Sarah (3.5 years) and Joel (7 months). Sarah does not appear to have any concerns visually at this time. She is going to the eye doctor soon though just to make sure. Joel was born full term and is doing fine developmentally. He does have a few physical "delays" but I think they are still within the average, just a bit late. At 6 weeks old, I KNEW something was not right with his eyes. His right eye seemed to turn in rather frequently. When I brought this up, I was told his eyes were still developing which was true... But I kept an eye on it. At 5 months, we went to the ped. for a different issue but I mentioned his eyes and she agreed that something was still not right so she referred us to a ped. eye doctor. It took about a month and a half to get in. When we did, the dr took about 3 minutes to determine that he had amblyopia.... AKA "lazy eye." I REALLY hate that term, there is absolutely nothing lazy about it! At the time, his left and right eye were turning in seperately at different times. I was very worried that he had double vision. The right eye seemed to be turned in more frequently. The dr determined that the left eye was becoming dominant so we patch that eye. We first did it for 2 hrs a day. After 3 weeks, there was ZERO improvement. I kind of knew that though. It didn't seem to be making much of a difference. Now the Dr said to patch for at least 4 hrs a day. So we generally do 4.5-5 hrs. Hard to judge with naps scattered in there. I can see that this is making a difference. We go back on Feb 27th to see if this is making any difference.

The questions I have in my head that I need to ask the dr are.... is it common for infants to have this diagnosis? Does it mean that his amblyopia is more severe because it was diagnosed so young? Is it going to be harder to treat? My thinking is that I am a pretty observent parent when it comes to stuff like this. I am a school psychologist but now a SAHM. I also have poor vision corrected with glasses and have vision concerns in my family... so I guess I am on the look out! Anyway, that is who this JennO person is.

Here are a few pictures of Joel...
6 weeks (picture for ABC pic contest... D- Dryer)

More recently....
6 months

Sporting a patch!


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February 12th, 2008, 09:53 AM
fiefer87's Avatar Mega Super Mommy
Join Date: Aug 2007
Location: Near Buffalo, NY
Posts: 4,336
Welcome to the VI Children board. I am Jennifer, mommt to Alexis who has septo-optic dysplasia. She was born with it and diagnosed with optic nerve hypoplasia at 4 months and the SOD at 6months. I don't know the answers to your questions, since we have never had to deal with amblyopia, though she did have surgery in December of 06 to correct a null point nystagmus. It was a similar type of surgery as they had to reowrk the muscles to shift this point. I am glad that patching is going better now, and I know if you have any patch specific questions, you can ask samylaine. Good luck with the appt on the 27th and keep us updated.

PS. Your son is absolutely adorable. Makes me want to have another right now.
<div align="center">Thanks Alison's Mommy, SillyMama, Katarina and samylaine for my blinkies.</div>
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February 12th, 2008, 04:10 PM
Join Date: Dec 2007
Location: bristol uk
Posts: 132
Send a message via Yahoo to hannybunny86
Welcome! Good luck on the 27th!

Joel is absolutely gorgeous! Such a cutie!

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