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-   -   Newly Diagnosed (https://www.justmommies.com/forums/f149-trying-to-conceive-pcos/2465355-newly-diagnosed.html)

LindsayKJones December 21st, 2011 08:52 AM

Newly Diagnosed
I have been reading posts on this board ever since I was diagnosed and finally decided to post myself, as you are all so supportive of one another.

I have been married for 2 years and my husband and I just recently started trying to conceive. I got off of birth control about a year ago to give my cycle time to regulate. I quickly noticed that I was having very irregular cycles and also starting to skip cycles. After waiting it out for several months, my doctor finally did an ultrasound and told me I probably have PCOS. I was immediately terrified and heartbroken, worrying we would not be able to get pregnant. My doctor told me she had many PCOS Moms running around and it would just take a little longer.

I have been on Metformin 500mg for 1 month. I thought as soon as I started I would have a period, but I haven't. I want to ask my doctor if I can go ahead and start on Clomid. I'm so afraid, I've heard these horror stories about miscarriages, ovarian drilling, IVF... I just never thought I would have a problem getting pregnant. No one in my family has had problems, my cousin is pregnant with her 7th for goodness sakes! Every one of my friends is getting pregnant with their 2nd or 3rd by now. I feel like something is wrong with me, like I've caused this.

My main question is how long does metformin take to work? I'm only taking 500mg, do I need a higher dose. I am afraid my doctor will want me to try lower doses and take my time, but I want to have a baby before I'm 30 and I just turned 28.

Thanks for any responses.

-Brandy- December 21st, 2011 10:40 AM

Re: Newly Diagnosed

It sounds like you and I are in the same boat, you have just been on the meds about 2-3 weeks longer than me. I too am on 500 mg of Metformin per day, my doctor told me it can take 6-8 weeks for the meds to really work. So don't fret just yet.

I am 28 as well, and have been TTC for 6 months. My cycles were not crazy long, but I noticed that they were getting longer each month- last month 39 days and seems this one will be a little longer.

We will get through this together, if that's ok with you?

aubers68 December 21st, 2011 11:01 AM

Re: Newly Diagnosed
Hi Lindsay!! My name's Aubrey and DH is Jason. I was diagnosed at the beginning of the year, after 6 months of trying on our own. Well, after being diagnosed my OB reassured me that it is completely possible to become pregnant and we shouldn't worry. She told me to just lose weight and things would work out. Well, you may know, but having PCOS, it is NOT very easy to lose weight. So we went on trying for a few more months. Finally I seen another OB and was prescribed Metformin. I was on the Met for about 8 days and AF showed. I continued the Met for about 2 months when finally I decided enough was enough! The side effects were terrible for me. Although it did regulate my cycles for those 2 months, and the one following, I just couldn't stick it out. Well just recently I started temping, my cycle was pretty long, and for some reason my DH insisted I give the Met another try. So a few days after O I decided to start taking it and have been ever since. (only about 3 weeks, but I've been doing really well with no symptoms) WELLLLLL just recently I found we are expecting!!! It DID take us about 15 months of trying, but it happened. My biggest piece of advice is don't get discouraged. Many women with PCOS DO become pregnant, sometimes it just takes a while. I know there are "skinny" cycsters, but if you are over weight at all I would start there. Try losing, eating lower carbs really helps. Keep up on the Met for a while and if it doesn't work then yea, no doubt, ask if you should increase you dosage. Another thing you could try, before jumping right to Clomid would be Soy Isoflavones . It is a more natural route and is supposed to act as Clomid. I took it for 3 months, The first 2 were really short cycles (28 days I believe) the 3rd was this last one, the one I became pregnant on. I don't know if it was the Soy that got me where I am, or just the proper timing, but I would give it a try :) WOW I'm sort of rambling on here so I guess I will cut it for now. If you have any other questions everyone here is great and I'm sure one of us can help :) Hang in there! Can't wait to get to know you better!!!

LindsayKJones December 21st, 2011 12:24 PM

Re: Newly Diagnosed
Brandy, it's great to have someone to talk to who is on a similar schedule as me! We can definitely get through this! Having someone to talk to is such a huge relief. My friends and family listen, but they can't possibly understand what it's like.

Thanks Aubrey! I know I need to lose weight, but it has been pretty much impossible. But I'll just keep trying harder! I read about soy somewhere else, I'll definitely look into that more.

Also, my doctor said it's likely that my PCOS could all but disappear after giving birth, anyone heard this?

Ritzbitz December 21st, 2011 12:39 PM

Re: Newly Diagnosed
Hey there! Welcome!

You said you heard horror stories about ovarian drilling??? I'm an ovarian drilling success story.. My baby girl is 6 weeks old! I had fertility treatments and iui's and injections for months before I had surgery! I got pg after 2 months post op after trying for 2 years! I strongly believe in ovarian drilling and am a huge advocate for it! Another girl from this board had it too and get Baby is 3 weeks old! I'd undergo surgery again in the future if I'd need to because it really works!!!!

Sapphera December 21st, 2011 01:37 PM

Re: Newly Diagnosed
I'm not on metformin, so I can't say anything about that.

However, on the weight loss - by the fact that you say you're overweight, you could be insulin resistant (Have you been tested for this?? They normally do it with a 2 hour glucose test).

There are a couple diets out there that work very well with cysters. One is the IR diet .. I've heard nothing but good things about this diet. The other is the GI Diet. There's tons of information about both online (yay google!).

I started following the GI Diet a LOT closer in October, and since then I've lost 4 holes in my belt and gone down a size (I don't weigh.. I refuse to.. LOL).

ANd it's not really about low carbs, but more about high fibre, low sugars, and COMPLEX carbs (simple carbs are metabolized into sugar faster which causes sugar spikes..and people that are insulin resistant don't process these the same way). I love my carbs, but now I can eat carbs AND still lose weight :D

*gets off the diets are awesome box*... sorry, just really thrilled that I was able to fit into some pants this week that I never thought I'd be able to dig out again!

~* Natasha *~ December 21st, 2011 07:05 PM

Re: Newly Diagnosed
Nice to meet you and really look forward to getting to know you better!

All these ladies have given great advice and I honestly don't have anything new to add, but I just wanted to jump in and say :hiya:

I have been on Met for probably at least 2 years (most recently), I take 1500 mg/day. I have taken Femara, Clomid, and injectable meds. We also did an IUI in November which was unsuccessful, but we are going to most likely go down that road again probably January/February...

Glad to have you here with us!!

catielove December 22nd, 2011 01:40 AM

Re: Newly Diagnosed
Most women w/ PCOS are insulin resistant to some degree. I would try a lower carb diet, phasing out any refined sugars you eat. (Soda, candy, white bread.) There are diets out there specifically for ladies w/ PCOS that work fantastically w/ met to help you lose weight.

I was diagnosed w/ PCOS in November, and also found out my insurance doesn't cover fertility treatments. So DH and I are doing this all naturally w/ herbs and supplements. I just got my first definite ovulation after over a year of not ovulating at all! I wish you lots of luck and baby dust, and know that we're all here if you need support or advice. :)

LindsayKJones December 22nd, 2011 07:54 AM

Re: Newly Diagnosed
Thanks so much catie! And congratulations on the ovulation! As of last night I have phased out carbs!

*MJ* December 23rd, 2011 03:09 PM

Re: Newly Diagnosed
I can't really answer your questions except to say that it usually takes 3 consecutive regular cycles to get eggs in line to ovulate that aren't damaged from the pcos. Before those 3 months I have had a lot of chemicals, and other women have early miscarriages. So I would definitely talk to your doctor about upping the Metformin (When I took it I took 1500mg!) and then be patient. You can still TTC, but expect at least 3 regular cycles first. That is the best way to go about it imo. Good luck! feel free to contact me with any questions as I have been successful twice now with getting pregnant with PCOS. It most definitely can be done, but it does require some diligence. You just have to try a little harder and wait a little longer sometimes then non-pcos women :)

And cutting out carbs and sugar will also help tremendously, especially with Metformin side effects which many women experience on the higher dosage.

Also, I used acupuncture this time to great success. Always an option, but I would get healthier first (the diet, add in as much cardio as you can every day, and then the Metformin).

Lynley December 23rd, 2011 09:15 PM

Re: Newly Diagnosed
I'm a Metformin success story - after starting 2000 mg of Met, I started having regular cycles (I think it took a couple of weeks for that first AF to show), and I got pregnant four months after starting the Met. That pregnancy ended in an early miscarriage, but I stayed on the Met and got pregnant again two months after my cycle returned. My baby girl is seven weeks old today, and I stayed on the Met my entire pregnancy, which I credit with preventing gestational diabetes and from me gaining too much weight (I only gained about 12 lbs, 6.4 of which was Eryn!). Try to give the Met a little more time to work (especially before moving on to Clomid or Femara), and consider talking to your doc about upping your dosage if you can stomach it (teehee). I'm one of the lucky ones who doesn't experience the side effects of Met, but they can be pretty bad, so upping your dosage would probably up the ickyness factor.

Good luck, and don't lose heart! We didn't even start trying until I was 32 - you've still got plenty of time! You're just a spring chicken! :D

LindsayKJones December 24th, 2011 04:51 AM

Re: Newly Diagnosed
Hearing your success stories gives me hope! I haven't really had any bad side effects to the Met and since I haven't had a cycle I feel like the dosage needs to be upped from the 500.

*Manda* December 26th, 2011 11:27 PM

Re: Newly Diagnosed
I think you really might want to be upped from 500. I've been on 1500 pretty much always. It's never helped my periods however it HAS helped me lose weight which has brought on regular cycles. I've been on and off metformin my entire TTC time of 2 years. If you just can NOT handle the side effects ask about the Extended Release. I switched to that this go around and I love it.

-Brandy- December 27th, 2011 10:11 AM

Re: Newly Diagnosed
Lindsay, I finally O'd this month a couple of days ago...how is your cycle coming along? Has AF shown up yet? This cycle is looking like it will be 48 day cycle for me (15 day LP). KUP with your progress!

LindsayKJones December 27th, 2011 11:24 AM

Re: Newly Diagnosed
Still haven't O'd and no AF yet. I made an appointment with my Dr to see if we need to up the Met yet. Congrats on your O'd!

-Brandy- December 27th, 2011 01:12 PM

Re: Newly Diagnosed
Maybe your body will be scared into submission now that you made that dr's appt?

LindsayKJones December 27th, 2011 01:23 PM

Re: Newly Diagnosed
HAHA, let's hope so! I'm going to take a round of provera in the mean time

-Brandy- January 5th, 2012 12:28 PM

Re: Newly Diagnosed
Hey Lindsay any updates? Have you seen/talked to your doctor again yet? KUP

AF showed a couple of days ago and I am on to cycle #7, which is also my first full cycle on Met- since I started taking it mid cycle last month. I am hoping that taking it for 20 days before this cycle even started may give me an edge this month.

LindsayKJones January 5th, 2012 01:57 PM

Re: Newly Diagnosed
Doctor appt is Feb1... I started provera this morning. Have been on Met since Nov 28 and no AF or OV... I'll report back when I talk to the doctor... she's thinking she'll either up met or start clomid, or both

LindsayKJones February 3rd, 2012 08:06 AM

I went to the doctor Wednesday and got a little bit of good news... after looking at my LH and FSH levels, she not 100% convinced I have PCOS.... my ratios are almost 1:1. Not sure that actually changes anything because she went ahead and upped the Metformin to 1000 mg / day, and I'm going to start clomid next cycle. Going to also keep using Provera to trigger AF if needed. She said that since we've only been TTC since October, I shouldn't be too concerned. But I am a type A personality and I have a strict life plan, haha. So we'll try clomid for 2 cycles and if that doesn't work she'll send me to a fertility specialist since I'm wanting to get pregnant now!

How is everyone else doing?

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